tag:blogger.com,1999:blog-2879466065973431818.post1758470767631659924..comments2023-06-29T05:24:15.747-07:00Comments on Fighting For It.: Trouble With ImuranRonni Leehttp://www.blogger.com/profile/10582495010765010031noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2879466065973431818.post-84961780004827347462012-09-18T03:29:34.764-07:002012-09-18T03:29:34.764-07:00Actually I've had this disease for seventeen y...Actually I've had this disease for seventeen years and have done literally countless hours over many years worth of research, and the one thing I can say for sure about ulcerative colitis is that everyone responds differently to different foods and treatments. When people "recommend" things to me about my disease by just telling me to do it as if I don't know any better, it is almost offensive. Scrambled eggs are one of the few things that don't irritate my symptoms even when I'm at my sickest. I am not gluten intolerant but I am intolerant to modern wheat. I can, however digest spelt just fine (an ancient form of wheat). Trust me, I have a VERY good sense of what foods make me feel better or worse when it comes to my disease, and I reign in my diet to varying degrees depending on how bad my symptoms are.<br /><br />One reason I'm trying these extreme drugs and now scheduling surgery is because I want to be able to eat like a normal human being. At this point I don't have a choice about surgery because no amount of diet restriction or drugs can help me (trust me - I've tried them ALL), but even if I could control my UC with a highly restricted diet, I would still choose surgery so that I can live my life to the fullest. <br /><br />Right now my symptoms are bad, but my current diet is one of the only things keeping it from completely spiraling out of control. If I was eating what I wanted (including meats, like you suggest), I would be hospitalized right now.Ronni Leehttps://www.blogger.com/profile/10582495010765010031noreply@blogger.comtag:blogger.com,1999:blog-2879466065973431818.post-7859697055931892582012-09-18T02:09:42.154-07:002012-09-18T02:09:42.154-07:00Hello,
You will improve if you cut out the scramb...Hello,<br /><br />You will improve if you cut out the scrambled eggs. Scrambling the eggs induces an iron superoxide radical to form which will cause sypmtoms as well as being really high in sulfur. If I had found your blog earlier I would have warned you off the whey and casein protein also. Stick with skinless chicken, ground turkey, and soy yoghurt. Avoid black and white pepper, too much salt and yeast. Eat like you are gluten intolerant and avoid yeast. No bread, milk, black or white pepper, too much salt, or super spicey foods like jalepenos or ginger (thins the mucus-bad). Stew all your vegies and take psyllium husk once a day at lunch. No caffein or alcohol. Instead of potatoes and oatmeal try white sticky rice and gluten free corn bread.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2879466065973431818.post-90053731507123941492012-04-02T14:41:04.940-07:002012-04-02T14:41:04.940-07:00How bizarre that yours just disappeared like that ...How bizarre that yours just disappeared like that - the body is a mysterious thing. <br /><br />I've read before about people's doctors saying that the fatigue is due to inflammation and not the drugs, but I tell you after living with this disease for seventeen years, it has NEVER caused the kind of fatigue that the aza did. Within two days of going on that drug I could barely get out of bed. Hopefully, though, your body will adjust, and things will get better. (That's what I was hoping for myself before I had to go off of it.) Good luck with the azathioprine. I hope it works for you.Ronni Leehttps://www.blogger.com/profile/10582495010765010031noreply@blogger.comtag:blogger.com,1999:blog-2879466065973431818.post-58131259960078160492012-04-02T07:29:35.165-07:002012-04-02T07:29:35.165-07:00I had something very similar happen two weeks into...I had something very similar happen two weeks into taking the Azathioprine (was 102.5 at it's highest which is mild in comparison to yours). I started having a fever out of nowhere with zero other symptoms. My reaction was the same, I called my GI right away and worried it was due to the drug. He told me to treat it like the flu but if it persisted or got higher to call. Mine also came at around 2-3 every morning and the chills/shaking were just uncontrollable and severe. This happened for 3 days straight and then just went away. I have had no problems since then. I stayed on the Azathioprine, but I was very worried for a bit that I was going to have to go off. I'm not quite ready for Remicade or Humira. I've had major fatigue also, but my GI believes it's just the inflammation and not the drug. He thinks the fatigue will pass as soon as the Imuran starts to fully control my flares. I hope he's right! Thanks for sharing! <br />~MAnonymousnoreply@blogger.com